Speakers:
Bedirhan
Ustun, World Health Organization, Geneva
Emmanuelle Cambois, Equipe Démographie et
santé (EuroREVES), Montpellier, France
Niels Rasmussen, National Institute of
Public Health, Denmark
4:30 – 5:30: Session 4 - Discussion of the U.N.
standard disability tables from Principles and Recommendations for Population
and Housing Censuses, Rev. 1 section on disability
This session will review the
concepts, definitions, classifications of disability, as well as the suggested
approach to collecting data on disability in the census recommendations and
making revisions to these based on the ICF.
In addition it will discuss the process that will monitor the
implementation of these recommendations.
Speakers:
Margaret Mbogoni, United Nations Statistics Division
Angela Me, United Nations Statistics Division
6:30: Group Dinner - Registration and Payment must be received
by noon 2/18
See Registration desk for
details and menu.
Tuesday, February
19, 2002
8:
00 – 8:30 AM: Continental Breakfast
8:30 – 12:00 AM: Morning
Sessions
Morning Chairperson: Richard Madden, Head, WHO Collaborating
Centre for the Classification of Diseases, Australian Institute of Health and
Welfare, Australia
8:30 – 9:40 AM: Session 5 - Global Measures of
Disability
This session will discuss
the types and numbers of questions that could usefully be used in census
formats. Of particular concern would be
the impact of the cut point associated with limited questions on the estimates
of disability that would result.
Speakers:
Joanne Hillermann, Australian Bureau of
Statistics, Australia
“The Australian Experience with a Disability Census Question”
Margaret Mbogoni, United Nations Statistics
Division
“Disability Census Questions, with an Emphasis on
Developing Countries”
Questions from the Chair: See notebook section
Next Steps - This component of the session involves
a discussion of possible next steps to
address the issues that have been identified and which issues should be
prioritized to be addressed in subsequent meetings.
9:40 – 9:50 AM: Break
9:50 – 11:10 AM: Session 6 - What is the Relationship
of Global Measures to the ICF
This session will examine what
components of the ICF are most useful for measuring disability in a more global
context with limited questions. Are global measures of environment and
participation possible? Are measures for
separate populations possible in a Census context?
Speakers:
Renee Langlois Statistics Canada, Canada
Joanne Hillermann, Australian
Bureau of Statistics, Australia
“Mapping of the Canadian and
Australian Disability Survey Questions to the ICF”
Questions from the Chair: See Notebook Section
Next Steps: - Participants will identify
questions of highest priority, what research projects or papers are
called for in future sessions as well as possible countries/researchers to
follow-up on individual components or possible collaborations to
address specific issues.
11:10 AM – 12:00 PM: Session 7 - Exploring the Confounding Function of Assistive Device Use
This session will explore
the identification of disability and whether the lack of specification of
assistive device use alters a true count of what is happening within a
population. Does the lack of accurate
consideration of all devices and their use compromise our measures? How does
this impact on global indicators?
Speaker:
Jennifer Madans, Associate Director for Science
National Center for Health Statistics, USA
Questions
from the Chair: See
Notebook Section
Next Steps: - Participants will identify questions of
highest priority, what research projects or papers are called for in future
sessions as well as possible countries/researchers to follow-up on individual
components or possible collaborations to address specific issues.
12:00 – 1:30 PM: Lunch – On your own
1:30 – 5:30 PM: Afternoon Sessions
Afternoon Chairperson: Nayiga Florence Ssekabira, Minister of State for Elderly and Disability
Affairs, Uganda
1:30 – 3:00 PM: Session 8 - What are the Unique
Cultural Practices that Influence the Nature of the Environment or Prescribe or
Proscribe Participation?
To ask participation
questions in a culture that prohibits certain types of participation to certain
members of the population is an exercise in futility. These presentations will address the cultural
attitudes within which the questions must be framed. Do these cultural differences constitute a
barrier to collecting comparable data?
Speakers:
Margie Schneider, Technical Officer,
Environmental Factors Task Force (ICF), World Health Organization, Geneva
Nora Groce, Associate Professor, Yale School of Public
Health
Questions from the Chair: See notebooks
Next Steps - Participants will identify questions of
highest priority, what research projects or papers are called for in future
sessions as well as possible countries/researchers to follow-up on individual
components or possible collaborations to address specific issues.
3:00 – 3:30 PM: Break
3:30 – 5:00 PM: Session 9 - What are the Unique
Cultural Issues that Act as Barriers to Collecting Data? Are there Common
Barriers to Data Collection that Occur Cross-Culturally?
Possible topics include
stigmatization, language barriers in multi language cultures, etc. How common
are these across different cultures?
What are the ways to involve persons with disabilities in the planning
process and the things necessary to allow for their full participation?
Session Moderator: Mr. B.Z. Gumede, Executive Director,
African Rehabilitation Institute (ARI)
Speakers:
Herman van Oyen, Institute of Public
Health, Belgium
V.M. Tamhane, Assistant Director, Office
of the Registrar General, India
Questions from Chair: See notebook section
Next Steps: - Participants will identify questions of
highest priority, what research projects or papers are called for in future
sessions as well as possible countries/researchers to follow-up on individual
components or possible collaborations to address specific issues.
Evening Activities - on your
own
Wednesday, February 20, 2002
8:00 – 8:30 AM: Continental Breakfast
8:30 – 12:30 AM: Morning Sessions
Morning Chairperson: Don Lollar, Director, Office on Disability, National Center for Birth Defects and Developmental Disabilities, CDC, U.S.A.
8:30 – 9:00 AM: Session 10 - Discussion of
Comparability of Information Cross-nationally
The group will be split into
four discussion groups. Using materials condensed from the previous day, each
group will discuss the major identified issues related to formats and forms of
data collections. How well do the global
indicators serve the purposes of various countries? The groups will also decide
what they consider priority issues to be pursued by the city group and will
discuss the global measures, identifying those which appear to satisfy the
needs of the data collection process, including data comparability.
9:00 – 10:30 AM: Breakout Groups
Facilitators:
Group 1: Helen Nviiri, Uganda
Diane Shinberg, USA
Group
2: Sam Notzon, USA
Renee Langlois, Canada
Group 3: Jacques Bonte, Belgium
Nora Groce, USA
Group 4: Genara Rivera Araujo, Peru (invited)
Yiu-choi Siu, Hong Kong (invited)
10:30 – 10:45 AM: Break
10:45 – 11:30 AM: Total Group Discussion - Priorities
Groups reunite at midmorning
to report their findings and discuss the nature of the most difficult
differences. This would also provide an
opportunity to develop further agenda items for subsequent meetings.
11:30 AM – 12:30 PM: Cross-cultural Validity of Global
Indicators
Can we agree on what specific global indicator
or set of global indicators is workable?
Moderator: Jennifer Madans, Associate Director for Science,
National Center for Health Statistics, USA
12:30 – 1:45 PM: Lunch – On your own
1:45 – 3:30 PM: Afternoon Session
Afternoon Chairperson: Marleen De Smedt, Statistics on Health and
Safety, Eurostat, EC
1:45 – 3:30 PM: Session 11 - Conclusion and Wrap up
Selection of Organizing Committee for next Meeting
Selection of Site for next meeting
Review of Next Steps recommendations/ possible products
Development of assignments for next meeting